Growing a Boy: Help Me Sail

I knew it would be hard. Yet the hard has not been at all what I expected. Days crying, researching, withdrawing from the world, not knowing what to do. Most days my head feels like it is barely bobbing above the water. I gasp for air. One more wave will surely pull me under. This is not the life I imagined having yet here I am. I seek to have a heart of gratitude, to see the good in all that is around me. I also recognize in the blip of life, these moments are small but the decisions I make in these moments will leave lasting evidence and imprints on my child.

I have a disabled son.

He may not seem it to the looking world. I think that is some of the challenge. The somewhat invisible challenges are often harder for onlookers to embrace because they are not seen--they are not tangible. To be honest, it is hard for me sometimes to embrace them too (and I am his mom). 

Entering first grade, I had such hopes that our boy would thrive. He overcame so much in kindergarten that I thought without doubt he would keep propelling forward in the world of academia. A month into first grade--- road block after road block we have hit. I am left with the desperately difficult decisions-- do we keep going? Do we repeat 1st grade? Do we just "get through" this year and then move to a new school next year? On the surface (or even typing them), the decision does not seem that big. Am I overreacting? Am I hype focused on something that doesn't really matter?

But it does matter. I am his mom. I am his first advocate (along with my husband). We lean into our faith...no matter how little our faith might feel in the face of these mountains. In a moment of desperation, I purchased a necklace on Amazon. A necklace, you may be asking, what does that have to do with your struggle? The gold chain, with a circle pendant, holds a mustard seed. A small, almost unnoticeable mustard seed. If you are the believing type, you may recall the parable. A faith of a mustard seed can move mountains. That is the hope I am clinging to. If I can just hold it together, "muster up" a bit of faith, I can sail through the storm--not drown. The Hope that rests in Jesus alone is enough. He is good. In His love, He gave me my medically complex son. Truly a gift. Through my son (and many tears and toil), my faith deepens. I see God answer prayers in subtle ways. I find ways to uphold others in my community who are also struggling. In my suffering, I strive to serve. To remove my eyes from the pit in front of me and look up and look around. What beauty to behold. Just in this past week, I have seen not one but TWO double rainbows--at just the right time. A visible reminder of God's love and promises to me. What joy and hope. In this past week, a dear friends sent me and unexpected "just because" "I'm thinking of you" gift. Wow! God does see and hear the deep longings of my heart. 

I recognize we are all suffering in some way. We are all facing hardships of varying kinds. I am not alone. I try to fix my eyes on the author of my faith, share my struggles with others, see the struggles of others and cling to my mustard seed of faith. God will work out the details. I simply hold my hands open and up. I surrender, Lord. I give you my little faith, my tears, my toil, my deep pain. Prevent me from drowning. Instead help me sail.

Growing a boy: I had a moment of PTSD

Our family is settling in after Oliver's February diagnoses (2021). What felt hopeless and insurmountable for Oliver has now become our everyday---managing medication, incorporating PT & OT into daily routine, researching/education and shifting how we parent to better accommodate how our sweet youngest processes life. It has been an adjustment but an honor to see this little man's life unfold and to rely on God to give us wisdom and direction in the middle of this pandemic. 

Looking back on Oliver's last 4 and a half years of life, it is a privilege to stand where I do. To watch him thrive in preschool--almost mastering skills I thought he would never learn. Peering at his sweet sleeping face, holding his creations from school and reflecting back on his amazing use of language and words. I am in awe.

Despite the growth I have seen, I had a flashback moment today while driving to pick up Oliver's siblings from school. Exhausted from preschool, Oliver quickly fell asleep within 5 minutes of being buckled into his car seat. As we drove the 25-minute drive to his sibling's school, down the leaf covered street, Oliver began to sporadically cough in his sleep--more of a gag. His eyes closed---sleeping, still, not moving.

Instantly, my mind went to worst case scenario. I was reminded of when he stopped breathing after we finally brought him home. I was reminded of the time when Tyler rapidly drove Oliver to the ER, rubbing Oliver's sternum almost the whole way. My mind recalled the pain of trying to feed him while dealing with his reflux coughing fits.

In the pouring rain on a gloomy fall day, with snowing leaves, I had a moment of PTSD.

Every few seconds I looked back---my mind conjured up a thousand questions (& panicked scenarios) while trying to keep in my minivan in the yellow lines on the wet roads:

• Is he breathing? Does he have color? Is his chest rising and falling? Is he moving---at all? Do I need to call 911? Should I wake him up or let him sleep? 

What felt like an hour (seriously) was really only two stop lights. By that time, Oliver cleared his throat, moved his hands and adjusted his head -- almost as if to say, "Nothing to see here. I am fine, just choking a bit on my saliva while I sleep."

I could have had a heart attack; my heartrate was so high.

**SIGH** Relief.

I pulled the van safely into the school parking lot, reversed into a parking spot and about lost it. Grief. Pain. Hardship. All of those "not so fun" emotions from a "not so easy" season of life--I need to let him sleep. I need to recover from my emotions. A kind act from another mother--who brought my other two children to my van while Oliver slept--was just the moment I needed. A moment of grief, a moment of acknowledgement--sitting there for just a moment--before I had to jump back into my role as a "Mother of Three"

I am thankful that mother, unknowingly, gave this moment to me. I am grateful I could recognize but not linger in my grief. In the past, it would have taken a while for me to "snap out of it." The Lord has blessed me with healing, with joy, with peace about all the events we faced as a family upon Oliver's arrival.

I had to laugh a little though--of course ALL of this comes on the eve of his annual surgical follow-up (which includes a chest x-ray, nutritionist, echocardiogram among other tests/procedures). It has been a while since I have had such a blatant reminder of Oliver's tough beginning of life story. 

So, I sit here at my computer--all three children snug in their beds for the night--grateful. Oliver continues to remind me of just how precious this life is. None of us are guaranteed tomorrow. What we do--What we say--How we say it-- it ALL matters. I hope you take this as a reminder too...we simply trust the Lord, submit our ways to Him and He will always show us the way. He will always be our Healer. He will always bring us through our hard things--whether on earth or in Eternity with Him.

Glory be to God Almighty.

Growing in faith: Let this cup pass

Jesus knew He was on His way to death. He cried out to God, "My Father, if it is possible, let this cup pass from me." Then, in recognition of God's Almighty Power, Jesus said, "Yet not as I will, but as you will." (Matt 26:39)

This passage reminded me of OSH's day of birth. On the OR table, having just had my premature, unresponsive son cut out of my belly, God directly spoke to me saying, "I giveth and I taketh away. You have to be okay with that, ok?!" 

It was a command. It was a fact. It was a reminder. It brought me comfort. Knowing only God is in control of life and death--no matter what the medial team did or did not do. No matter if the doctors and nurse did everything perfect or not. God told me that He controlled Oliver's life. 

In my Bible reading today, I was struck by Jesus' words, "Yet not as I will, but as you will." (Matt 26:39). In light of all of the recent testing and testing to come on our youngest, I will commit to praying this prayer..."Your will be done, Father, Your will be done."

As I surrender, pray, and accept, I find myself in a glorious spot. I find myself again recognizing the beautiful gift our youngest son is (all of our children for that matter). I find myself staring at him in awe of all he overcomes everyday to perform daily tasks. I am reminded that he needs a bit more patience and direction and handholding (literally and figuratively) to accomplish simple directions. I realize that perhaps I am not the best person to teach him preschool "academics" but I am his biggest advocate and resource seeker. I see that I cannot compare our family dynamic with other families in similar stages because our family must do life slightly different. 

I will pray that God will train up his mind to overcome challenges, but to pray for healing...why? He is perfect just the way God intended him to be. It was and is God's way that our son came into the world as he did. It is God's way that as parents we are refined by the "unexpected," our responses more quickly turning to God than any thing else. 

When I once had no hope, God is faithful. With a few new discoveries and possible avenues of support, I know that I can forge ahead in confidence and faith. Our "perfect" son, just as God intended him to be. I write this with a smile on my face and a joy in my heart. God is holding me fast, teaching me, and encouraging me to look beyond what is right in front, the temporal. God is so gracious to us by giving us Oliver, his "complexities" and all. Our little boy is a miracle. He is a teacher, one who teaches us daily to turn to the Creator. 

 As you will, Father, as you will.

Growing a boy: Ugh! The Turning Point

Nothing about our youngest is "normal." Yet I think about myself, my husband, our other two kids, my friends etc. And then I ask myself, "What really is normal?" because God has made us each so perfectly unique.

Over two months ago, I took OSH to a neurologist, per the recommendation of his Seattle doctors. In that neurological appointment, it was revealed that OSH does have neurological deficits...we just don't know what exactly they are or how extensive they are. The doctor placed OSH in a category, giving him a mild diagnosis (that I do not wish to share out of fear of labels and partially out of an unwillingness to accept such label). It was recommended that OSH receive a head MRI to further explore his deficits as well as a means to better facilitate his growth and learning. However, to get this MRI, OSH would need a COVID test and sedation. 

My initial thoughts, "NO! I WILL NOT PUT MY SON THROUGH THAT TO SIMPLY "KNOW" WHY HE ACTS THE WAY HE DOES...IT DOES NOT CHANGE WHO HE IS!" (as I type, I can feel my blood pressure rise)

My husband agreed that it was not a necessary procedure, especially given the raising cases of COVID in our city. SETTLED! DONE! I had my "normal" boy "back." (I could put his medical difference behind me and continue on as though he was and is in fact, normal.)

As the weeks have gone by since this appointment, my mind and head fluctuated in waves. "Ignorance is bliss, right?" I would say to myself. Or, "does it really matter if we know WHY or HOW these neurological deficits occurred?"  The doctor had three possible reasons for OSH's neurological hyper-responses. But did we need to know?

 

Then...the turning point 

This past week we have seen OSH have a difficult time opening a doorknob or holding his Legos in his right hand. He began to say things like, "Mom, this is not my power hand because it doesn't work as well, it is not stronger." 

Queue the heartbreak, heartbroken, heart shattering song.

My son is different. Now, I need to know why.

So in the coming weeks, on a scheduled Friday, our sweet youngest will stop eating by 2am. He will stop drinking by 8am, he will get sedated and then, in the early morning, have his head scanned. To say that I am terrified is an understatement. Will there be complications with his sedation? How will his lungs do as he is "under?" How will he manage not being able to eat? Will he be able to handle the noises of the hospital? And on and on it goes...

And...only one parent can go. I so badly want to be there with him; however, Daddy stepped up to fill a spot that I think I would otherwise be too emotional to fill. So what then should be my response? 

PRAISE, TRUST, FAITH and HOPE that our little boy was created FOR and BY God. In his life, God will work all things out. So, I *try* to put my fear aside and embrace this opportunity to display God's unrelenting love to our son and to the watching world. Because God has made us all unique, our own kind of normal to show the world just how GOOD God really is.

Please join us in prayer.

Growing a boy: We have a PRESCHOOLER! (almost)

Guess...what....

Oliver is registered for P R E S C H O O L !!!!!!!! In the fall, our sweet miracle will join the ranks of academia. Wow. To be honest, these thoughts were far from my mind. I never pictured him with a backpack and lunchbox walking into the school building. I never imagined him sitting at a desk, following instructions, doing science experiments, "writing," cutting with scissors or playing during recess. This is an amazing milestone. I am beyond excited to take those first day of school pictures in September.

We have a few "hurdles" to overcome before preschool can happen and one of those is potty training. We are -- SLOWLY -- on our way to make this happen but overall he is doing okay. When I talk to him about going to school, he is very excited.

Between now and then here is how you can pray for him (and us):

• Potty Training!! The goal is to have him 100% trained by the start of school in September.
• He needs to wear his glasses! (They got lost so we are currently waiting for his new pair to come in)
• Walking up and down stairs (with alternating feet) with limited support (aka without holding onto the rail).

In comparison to his birth story, these things are so so minor!

FUN FACT:  In 2020, Oliver is a Children's Miracle Network "Champion!"

• What does this mean: Every year, 170 local Children's Miracle Network Hospitals identify a “Champion” in each of their local communities to serve as the face for children treated at their local children's hospital. These ambassadors spend their year advocating for the charitable need of children's hospitals across North America.

At the end of the month we will be attending the Children's Miracle Network Summit to kick off this fantastic year. Be on the look out for his picture at your local Safeway, Costco, etc.

~B~

Growing a boy: When things are good

Hello All (whom ever you are!). I want to thank you for joining me on this journey of musing. I have learned that this blog has created a space for me to process (and grieve at times) as well as remind me of how connected I am (our family is) to those surrounding us. Recently, I was reading blog posts from a year ago. Through this activity, I realized that this space is so necessary for my personal journey. It has brought emotional healing, revelation, tools (sent by you, the readers) and more than anything, it has pointed me back to the Creator.

So in this season, when things are tough but good, I wanted to THANK YOU for always being part of this Oliver Adventure. Oliver has taught us so much about our need to rely on God. He is amazing for showing us that. It has also taught us the love we have for you all. It has taught us to SAY, aloud, what we are thankful for on a daily basis (and on most days, writing it down as a reminder and memorial stone).

Since my last post, we are learning a lot about how to best serve Oliver and his sensory needs. Sensory bins (scoop and dump, scoop and dump, as OSH says), is one of the best "calm down" activities we have discovered. He is learning to self-regulate with the ear muffs and most of the time not even wearing them. I think he finds security in knowing they are there if he needs them. We have purchase "teething" necklaces for car rides and while at the grocery store (this past month at the grocery store checkout he has chewed through a bag of beans, carrots and the silicone lining of a whisk!). Any recommendations for the "best" teething necklaces?! Please let me know. Oliver is thriving with his PT (now a weekly occurrence) and at his surgical follow-up the doctor IS NOT recommending orthotics (which was a surprise to us)! We are on the wait list of OT but are not as concerned about that (yet) since his PT has helped him improve so much. The tape on his glasses (when he wears them) is improving his eyes turning inward.

Now that OSH is 2.5 years, we had his neonatal followup as well. He scored "normal" on every thing. Fine and gross motor, he scored pretty low (but still in the normal range). Not a surprise to us, he scored normal-high for comprehension and verbal. (He literally talks ALL THE TIME...to the point I almost can't drive with him in the back because he jabbers on so much). :)  A blessing, right?

Overall, we are living life! My thoughts and heart have settled since a few weeks ago and we are learning practical tools on how to help him thrive in his daily life. If you would like to pray for him specifically, here is how:

• Healing (he is currently sick & I always worry about his lung -- or lack thereof)
• Gentleness (he has taken to pushing and shoving his older sibling [and even us] out of an aggressive heart)
• Volume (he often screams/shouts/speaks at a yelling tone. As you can imagine, it is difficult to parent, or drive, when this happens and always can get us all riled up)

• Wearing his glasses (recently, he has decided that he just does not want to wear them and as a result, his eyes are turning in)

Bless you all for joining us in celebration & prayer! I hope you have a wonderful week in HIM.

Maranatha 

Growing a boy: Knowing the difference

Learning new things is good, right. (I say this as I laugh). It has been a long time since I have had to study something and then be "tested" on it. This is how I feel as I learn about parenting Oliver in a new way.

My alarm went off this morning as these thoughts challenged me regarding having a child with sensory sensitivity....

What is the difference between:

• discipline vs. redirection (do you disciple? how...without evoking triggers & without going to the extreme of not disciplining)
• "terrible twos" vs. a child with sensory challenges
• tantrums vs. meltdowns

Other questions:

• How do you parent three young kids (16 and 15 months apart in age) with one of the three requiring "different" parenting. How do you handle the appearance of "special treatment" or special privilege among the three kids? 
• With regard to boundaries and expectations: what is Oliver really capable of? We have a raised bar of exception for our children. Do we need to adjust them without labeling or holding back our son? 
• How do we talk about Oliver's challenges without labeling or restricting what he can do? What words do we use to describe Oliver (or do we need to describe him at all? ..surrendering the need to justify the way God made him).
•  What tools can we use to prevent "craziness" at pick-ups or after church service or while checking out books at the library or buying groceries in the store?
• What tools are there for me to emotionally cope as our son has a tantrum/meltdown and is running away from me screaming and not listening?

These are questions that we are seeking answers for. We know there is no manual or easy answer, but, if this is our new reality, how can we succeed, doing the best for Oliver, for our other two kids, for our marriage, parenting and community? So I end this blog with these questions, desiring to honor God in all we do as we embrace this sweet child that God created and made live.

Growing a boy: Today was an "opportunity"

....yes, an opportunity. I am striving to refrain from calling it a setback or hindrance or a difficulty. I am in the process of re-framing my mind to seek joy and gratitude above all else.

The opportunities today were:

• Trust God
• Be vulnerable (crying in about three or four different conversations...I mean the  not pretty, ugly cry)
• Remind myself of my true identity in Christ
• To believe in my kid(s)...NO MATTER WHAT their actions may display
• PRAY (like crazy)
• Seek support

I am sure there were many more opportunities in my day as I cared for Oliver and the other two. It was an "opportunity" type of day. Not many days lead me to tears but today, I finally broke. At school drop off when a staff member asked how I was....I just started to cry. When I picked up our oldest and Oliver was "being Oliver" I just about lost my mind...no really. I fought back tears the whole way home (about a 25 min drive!). It was a tough day. The emotional build up from Monday and this icky sickness that is clouding my mind, making it foggy, just put me over the edge.  I know there will be hard days. I know there will be huge successes. And above all, I know that God is in them all. He has put me here to bring Him glory. He has made me Oliver's mom to refine me and draw me closer to Him. He has allowed these circumstances so that I can encourage others who share similar stories. This is all good...but today, I faced many opportunities. :)

OSH was so cute today. I gave him a purple rice "heat" pack, thing (weighted). He carried it around all morning calling it his "dinosaur." It was pretty adorable. Someone had sent the rice pack to Oliver's NICU room in Seattle as a gift for me, to help with the healing of my c-section. It is amazing that Oliver is now in possession of this precious and useful gift. A perfect picture of God's foresight. He wore is glasses all morning (with the tape on the inside of each lens) without taking them off! Huge success! He did pretty good at walking up and down the stairs today alternating feet (working in his bilateral coordination and strength). Reflecting on these things, it was a good day.

Why is it that it is so easy to focus so much on the bad or the hard? Dwelling on what could have or should have been? Or on the things that we simply just cannot handle?! But God is so good as He shows us His tender love as we process through these big and small events, reminding us that our identity is not in our circumstances. It is not in what has happened to me (or those around us). We should solely fix our eyes on Jesus, the author and perfector of our faith. In that, our circumstances look different. In light of spending eternity with God, these "opportunity-type days" are just that....an opportunity to put into practice all that God is calling us (me) to be, all He is and has taught us....We are His beloved. Loved by our Creator despite what is/has happened. It is an opportunity to extend to ourselves the Grace the Jesus extends to us....to accept it, believe it.

So yes, today was an "opportunity-type-day," but in today, I saw/felt so much love extended to me as I poured out my heart to others, sought prayer and was reminded of my real idenity in Christ. What a blessing to have a compassionate community who loves Jesus and each other.

Praise be to God!

Growing a boy: Embracing & Processing my "sensory kid"

Oliver had a PT and an eye appointment today. He walked around most of the day with his ear muffs on and the eye doctor put tape on the lens of his glasses to help his eyes from turning in (a vision therapy tactic). I have not even asked Tyler how the PT appointment went this morning (maybe out of fear or simply being more overwhelmed than I already am).

I take pause. Sit with my Bible and allow God to wash over me. He reminded me of all the precious words He spoke to me on Oliver's birthday and within the first month of Oliver's life.

• "I giveth and I taketh away. You have to be okay with that."
• Only I (God) am control of life or death.
• Why not you? Why should you be exempt from suffering in this world?

These phrases sit close to my heart today. They take me back to the minutes, hours and days after Oliver's birth. They remind me of God's faithfulness, His peace, during those times. He KNOWS Oliver! He was good enough to show us, just a mere two days ago, another aspect of this amazing human HE has made...He made Oliver JUST for OUR family. This means that God also made me to be Oliver's mom. What an honor and privilege.

My mind wants to take over and dive deep into learning about sensory processing, sensory toys and other tools/techniques. (Not bad things). But today I am reminded that God....GOD....God is enough. Nothing more or nothing less. It is an example (I think) of what is recorded in the book of Matthew, "blessed are those who mourn, for they shall be comforted." (5:4). I need the Lord's comfort today as I process this news of Oliver being a "sensory kid" or "on the scale". (why are these labels so icky to me? What do/can I say instead?!). The "new and shiny" excitement of learning this news has quickly worn off. In some ways I feel devastated yet in others I still hold onto hope (JESUS) for this sweet miracle toddler who was given less than 1% chance of survival at birth. You can't see it, but tears well my eyes as I type. I need the Lord's comfort.

I am forever grateful for April 2, April 5, April 13, April 30. These dates are HUGE milestones in OSH's life (birth, surgery, breathing tube removal and his first homecoming). In May, I wrote a blog "Growing a boy: I'm not celebrating" which ended the first chapter of my processing of Oliver's birth and the first two years of his life. We are now moving into Chapter 2 (or maybe it should be section two). Anyhow, I am SO thankful to have processed much of the first two years of Oliver's life, then had a moment's pause-- a wonderful and pleasurable summer of very few therapy appointments and savoring our new backyard. Now, it seems, we are jumping back into another season of challenge that pushes me/us to rest and trust in the Lord. I pray I can keep this in perspective, process quickly (yet appropriately) and not hinder our other two, older children. I pray I will not become obsessed with this discovery of Oliver's sensory challenges or talk about it/focus on it too much. I pray that I can give GLORY where GLORY is due--that I can share God's faithfulness in the midst of this struggle. I pray that God will remain the forefront of my mind and heart---with every up and coming decision we have to make. I am thankful once again for an incredible medical team who listens to us, takes our obervations seriously and does not judge. I continue to thank the Lord above for each of you who join us in the journey as you pray for us and reach out to us. (With tears **again** in my eyes, I type--- GOD IS SO GOOD! Despite anything and everything my salvation and hope rest in Him! I pray the same for you in your life's struggle. Trust that God is FOR you and if God is for you....who can be against you (Romans 8:31).

Maranath.

Getting healthy: Stop Comparing

I did it!! I stepped onto the scale. To be honest, I was a little nervous at first, not knowing what to expect but I figured that I need a baseline, right?! (And we allllll know that the scales at the doctor's office always add least 7-10 pounds, right? So my weight from last week's visit didn't "really" count).

I am not as far off as I thought I was but the hard facts, the number...well, they never lie.

Three days strong now...on my path to becoming healthy. I had many food successes yesterday and had a lot of inner-battles surrounding the snack drawer but overall, I am very pleased. I also had only two cups of coffee, one of which was DECAF! Yes, you read that right...can you believe it? Movement successes abounded yesterday & today too...I chased my kids, danced more when I played music. jogged on the treadmill this morning and found my fitbit (which is still not charged...on my list to do today). Spiritually: still trying to figure this one out. Maybe I should start by finding 10-15 minutes per day to just pray, maybe read? This goal seems doable.


HONEST CONFESSION:

I want to preface that this blog is (hopefully) not (seen as) a platform of my complaints, but rather encouragement for you and me for the sake of growth & for my personal accountablity (which, by the way is working!).

The start of this journey (months back) was rough. I saw other moms with two, three kids or more, looking fabulous. I was jealous. I did not have the time (what I am finding now it was really lack of motivation), to get my "smokin'-hot-momma body" back--(which by the way, at no point in my life have I actually, truthfully saw myself this way). I was comparing.

This journey is not about comparison.

It is rejoicing in the successes of others (and for myself, rejoicing in the small victories like drinking water with every meal yesterday) and realizing that we ALL have some type or insecurity/struggle--be it our physical health, our marriages, finances, balancing our work, traumatic birth experiences, loss of loved ones, complicated child/adulthoods or the pesky hair that grows on our chins (did I really just type that!?!). There is always something we want to strive towards changing yet we often forget to CELEBRATE the good stuff that is happening. So let us stop comparing. Lets start celebrating! (OH---sounds like a great party theme!).

Months back, I found find myself thinking that I was not good enough, strong enough or that somehow others have it figured out way better than I did (motherhood, working out, meal prep, ect.). But these thoughts are all false. I caution you: do not fall into this spirit of comparison...it will only hurt you deeply and take your eyes off all of the glorious things you are, you have and you do.

When I take a step back from my, "I am so alone, no one likes me and understands what I have gone through" mindset, I realize that who ever is reading this right now is dealing with something---maybe to the same degree, maybe more, maybe less, maybe something entirely different...regardless, we are all doing the best that we can do.

It is NOT about comparison. It is about encouragement!

A few weeks ago a friend suggested that we join a gym together. The first thought was, "Oh, no, she will now really see just how out of shape I am." This mindset has been with me since junior high or maybe even before: never show weakness, push through, fake it until you make it. I am glad I realized this about myself. It is okay to be weak (I said it!) in some areas...this is an opportunity to grow, improve and ENJOY the process. And enjoying it I have (at least on day three). :)

I hope this blog empowers you to enjoy where you are and moves you towards where you want to be. Until the next post!

Getting Healthy: It's 5 am

My motherhood duties beckon me this morning at 5am. Not much sleep for the weary here. I comfort my youngest with a cozy blanket, a sippy cup of water in his crib and two rounds of "Twinkle Twinkle." Hoping to get at least another hour of sleep, I sneak back into bed with a heavy, sleeping husband who arrived home just two hours prior. Not being able to sleep next to his "deep sleep," I decide to take the treadmill for a whirl. Thanks for encouragement from Ray-Mau ;) I FINALLY listened to a saved podcast from three weeks ago!!!

My twenty-minute treadmill "speed" walk ended with my 4.5 year old startling me as she walked into my workout. It's now 5:40am and all three of my children are up....what is wrong with this!?! They used to sleep until 7am!! Seriously, can someone tell me if this is normal...I mean really...is it? Momma thought 5am would be a "safe" time to have some alone time. I am letting my 2 year old babble in his crib; I hear my 3 year old moving around in his bedroom but I DARE NOT check on him or game over; I sent my 4.5 year old back to her room for at least another 20-25 minute.

What I am doing is important. It is not only important for me but for my children as well. They need me to be healthy as much as I need me to be healthy. I am learning to be okay with this. I need to advocate for myself within my family so that I can be healthy.

FOCUS-- okay. So as I was walking I also realized that my "getting healthy" is trifold:

1. Spiritual Health
2. Emotional Health
3. Physical Health

For me, these areas are very much interconnected. Since the fall of 2018 I have been lacking in my spiritual health, unable to find a Bible Study or connection group that my little-ducklings can also be well taken care of while I am fed. I have not gotten into a routine at home that is sustainable yet I do teach my children daily about Jesus...for the next month we are focusing on the Fruit of the Spirit through song, craft and service. I guess in a way I am being feed through these activities. It just looks different from what I want it to me. (I am looking for suggestions, though....always! of a solid connection group I can join).

I am thankful I am once again emotionally healthy-ish after the last two years of dealing my "trauma-birth-brain."

And my physical health, point number three, which will be the main focus of this blog series with touches of the other two areas. I am so excited that I now have the mental space to be able to take care of myself and recognize my three "needs" areas.

BRASS TACKS:
Successes so far (okay, it has only been about 24-ish hours since making this declaration of getting healthy, but small successes compile to achieve the WHOLE goal!):

• I did two short workout videos yesterday (& my arms are now sore--VICTORY) and I did a treadmill walk this morning...maybe I can sneak a "goodnight" walk into my schedule 10 minutes before I go to bed!
• I ate soooo many veggies yesterday! I still have a VERY painful tooth so the thought of crunching veggies or consuming cold, juicy baby tomatoes is terrifying. BUT I did it....cucumber "sticks" YUM, sliced baby tomatoes in hummus, carrot chips---much easier to crunch.
• I drank water! After afternoon "rest time" (ha!), during dinner and during the Grey's Anatomy season finale. I love my water bottle. That makes drinking fun.

Facing today (well the rest of it):

• Limiting carbs (like unneeded crackers while my kids are snacking)
• Limiting extra dairy (sneaks of cheese slices)
• MORE veggies and MORE water

Okay, it is now 6:15am. I can no longer hold back the forces. Time to wakey-wake.

I hope you feel encouraged today too!


 

Getting Healthy: Just getting started

I just closed a two-year chapter/blog series titled "Growing a boy" on the challenges of dealing with a son born prematurely who was close to dead at birth. As I have finally closed that emotional chapter, finding healing in more ways than one. Now, I am ready to move on. I am starting a new chapter...a new chapter with passion, a little motivation and just a little more determination to come against my excuses. I want to be physically healthy again.

Here are the challenges:

• A husband with an irregular work schedule making it difficult to find time away from the kids to exercise. 
• I work full-time (yes it is online but it still requires a lot of my time/attention amidst kids activities and husbands schedule). Like working out, I feel like I have to squeeze my job into our already crazy/tight schedule. 
• Three children ages 4, 3, 2 who are relentless and need constant supervision. Working out with them is next to impossible without tripping over them and hurting myself (or them).
• Sleep deprivation: Even though my kids are a little "older" I am exhausted at the end of the day (to the point of being an almost angry mother at bedtime --Dear Lord, PLEASE HELP ME!). At least one of the three kids awakes during the night; the husband comes home between 1-3a (usually waking me up) and then our brood is up at 6am. I have been trying to get to bed by 9:30pm on most nights...it seems to be helping. Naps were an option but now 2 out of the three are on a nap protest (& quiet time turns into a fight...why do I EVEN TRY to have some alone time in the afternoon...okay, sometimes I just let them fuss in their room & tell them that momma needs a time out).
• Food: Let's be honest, I eat what my kids eat and snack on what they snack on. Husband is not home most nights so I end up snacking for dinner after the kids are asleep. True confession: the other night I have popcorn and ice cream for dinner. Winner winner! ;)
• Another food challenge: I don't like to cook (& don't really know how to get out of my norm and/or make food everyone in my family will eat or enjoy. I really don't want to waste my efforts...but maybe I should?).

Excuses (see above and below!):

• For the first year of our youngest son's life, I was overwhelmed, burdened and stressed (to say the least) due to his eventful (for the lack of a better word) entrance into this world. Two years ago April, I was in survival mode.
• After this first year, I told myself it was time to reclaim my health...in August 2018 actually. In doing so, I took a smoke-stack tower fall, straight over onto my left hip on our tiled kitchen floor while "trying to fit" exercise in while my youngest was contained in the highchair. After a round of physical therapy in December-February, I finally felt relief in my lower back. 
• But then, the excuse of "we just moved" crept in in November and I have stayed there until recent.

Motivations:

• I want to get healthy so that I can hike with my husband, run & play sports with my kids and enjoy the calm kayaking waters without pulling a muscle.
• I am TIRED of carrying this two-year postpartum baby weight (and wearing maternity shorts, baggy shirts and stretch pants because 1) I have them and 2) because nothing else really fits well (or comfortably).
• Exercise and wellness are legacies I want to leave for my children. I want them to see their mother working out and eating well...not for the sake of appearance but for the sake of taking care of the temple (my body) given to me by the Lord. It is my responsibility to take care of my body.
• AND....My doctor said so. Okay...I may have probed her just a little at my recent annual check-up (which has actually been TWO years) to hear her say that I need to lose weight but I guess it helped since I am writing this new blog series. Very kindly my doctor say that I am overweight....but closer to normal-overweight than obese-overweight (phew!). But the real kicker---she told me is is much harder to lose weight the older you get. Wow! I just turned 37 (seems old to me!) so I may as well shed some weight and enter into the "normal-normal" range. 

What's going for me:

• YOU! My reading audience in whom I'm hoping will encourage me in this process with easy favorite, healthy family recipes, encouragement to workout, etc.
•  Spring/Summer: In the recent sunny days, I have enjoyed pushing our youngest in the stroller while the "big kids" rode their bikes. Bonus: everyone enjoyed it especially with a destination like a play park at the end.
• My husband works night. (Yes, this is both a challenge and a "what's going for me"). I have the time after the kids go to bed to workout...now...I just need to get over my almost-anger-super-exhausted-mom persona and (as Nike says) JUST DO IT!
• I have Amazon and the internet.  I lost my 21-Day-Fix Workout videos in the move (anyone have them I could borrow?!?!) but I did find a pretty good workout program on Amazon. With the help of the internet, I have access to PLENTY of healthy food programs. I am thinking about trying the 21-Day-Fix eating plan again. I did this after my first child and lost a decent amount of weight and felt great. It was very adaptable to my food allergies too.

Plan of attack:

• I don't have one...okay, I have one kinda in my head and here it is:
• Blogging my journey for accountability (wanna join me?).
• Food prep...should I start tonight (but it is the season finale of Grey's Anatomy!).
• Exercise: Make it a goal to be active every day with two or three intention workouts per week. This I can do...I can push my kids to be a little more active: kicking a ball with them, running around the "track" in our house and going on walks.
• Simple, right? Well let's see where this one goes..... to be continued.

Growing a boy: My son was so close to death today

Today at 9am, marks two years since the life saving lung-removal operation for our son. It is an emotionally charged day. I woke up this morning anticipating that this day may be hard and recalled, "my son was so close to death today. Today, he was as good as gone." Whether that was the truth or not (since I am clearly not a medical professional but rather a heart-torn mom), those were the thoughts that crossed my mind two-years ago and remain with me. Today in church, they played the song that I heard on the radio the day I was driving down to bring our son home...tears. They played a song about the air in our lungs--which God clearly GAVE Oliver...tears. Tears being reminded of the painful moments leading up to surgery day. Tears of joy when we heard our son made it through surgery and was doing well.

On the outside, I may appear well but inside my heart is breaking and mourning. I remember almost every detail of surgery day so clearly--how I felt, the weather outside, what I wore, the "trolley" "comfort cart" that came to visit us in the waiting room during the surgery. These powerful, humbling, sad moments are still present. I remember watching the clock wondering when we would hear anything about our son's surgery progress. I remember searching for the same word over and over again in my "word search" unable to focus. Moving forward to present...

How do I reconcile this day that happened two years ago with our son's now amazing progress? Today he is happy, mostly healthy (besides the colds that rattle his chest) and meeting many of his adjusted-age milestones (besides fine motor skills).

I DO NOT want this season of his life--his amazing birth, life-saving surgery to define him, to become who he is BUT....but, it will forever be part of my journey. How do I process these events, these milestones without projecting them on him? The day I was admitted to the hospital in the end of March; the day we learned he had hydrops; the moment we were told he had 50% chance of survival; the day he was born and the horrific unknowns that were laid before us. How do I deal with days/milestones like today--surgery day-- and his upcoming "breathing day" when his breathing tube was removed and he cried for the first time? These moments are part of my journey (and his too) but I just don't know how to handle them...where to put those emotions. How do I "celebrate" them without these moments becoming our son's identity?

Over time I am sure it will get better. I certainly try not to dwell on this past history but somehow my body remembers and my mind quickly catches up. My body reacts to things like my daughter's dress I was trying to donate, which is clearly too small, but I just couldn't bring myself to donate...why? It was the dress she wore when she visited her brother for the first time two-years ago. So, the dress remains hanging in her closet. Weird and strange things like this pop-up unexpectedly. I guess it is part of the process. This season set aside, we are doing well. Outside this concentrated few months, we hardly think about the details leading up the this day. But in this season, we are brought back to the place were God did a miracle...where God heard us and answered our prayers in astounding ways. I am thankful for this hard season of reflection because how could we NOT praise God for what He did? It was only by His grace and favor that our son lives today. We were ready to accept that our son would be with Jesus but God had another plan. It is a reminder of how close were were to HIM and how HE desires us to be close with Him like that in every day, in every season and in every way. It is convicting; it is good and it is a blessing to have this day--surgery day--to point is all back the the Creator. He truly is in control of life and death and today--two years ago--He choose LIFE for our son. I will forever sing HIM praises for this and share this story of God's great love and great intervention.

Resist & Enjoy: A new kinda hard

Our schedule is back to full-swing, so to speak. All of our obligations have occurred at least once and we are on our way to a "normalized" routine (although every day still looks different).

Last year was one of the hardest of my life, filled with doubts and unknowns about our youngest and the stress of keeping up with work and life while raise two other toddlers.

This year we enter "pumpkin spice" season with a very new toddler at 1.5 years, an almost 3-yr old and a 4-yr old. Busy and overwhelming to say the least. I sit on the floor today almost in tears, feeling as if I can't keep up with these little treasures and work and maintain a household and a life. Not sure what to do, I bury my head in my hands and pray. What we "should" be doing is playing outside, enjoying the last few glimpses of the sunny weather. Guilt over takes me. But why?

I feel inadequate to the mother of these children. Words escape me when they need them the most and my tired body drags through the motions of lunch, dinner, bedtime...you want PB&J for lunch an dinner? Sure! That fits into the "healthy" food category, right? These things seem to matter less and less to me. Guilt again...because I SHOULD care about heathy, well-balanced meals. I try.

The days before us are busy but God is faithful. He is adequate. He has allowed me to mother these children. I cozy into Him for His extra grace, gentle pat on the back and a moments relief from the tantrums and toys being thrown around me. Thank you, Jesus, for my life! It could have been so much different. We could have only had two children, not three. I could be unemployed. We could not have a church or a place to live or..... this list of gratitude runs deep. So, here is to living life FOR Jesus and WITH Jesus, embracing the hard times and rejoicing in them. This season is just a new kind of hard but I am so grateful for it. May He get the glory. Amen.

Resist & Enjoy: What does "important" mean?

It's not yet halfway through September. The schedule is full, I am forgetting things and the rhythm of rush has pushed through my front door (Man! I thought I locked it tight!). So here we are. FALL.

Swimming, ballet, gymnastics. Work, dating my spouse, playing with my kids, friendships, exercise. Bible study, ministry leader, personal quiet time. Planning dinner, planning activities, planning....planning....planning.

But it should. be. different.

"Do not conform to the pattern of this world, but be transformed by the renewing of your mind. Then you will be able to test and approve what God's will is--his good, pleasing and perfect will." Romans 12:2

On a Sunday not long ago, our pastor pointed out that Jesus was never in a rush. Wow! How powerful! What can I do my life differently, like Jesus?

RELATIONSHIP. FOCUS.

In my personal study time today, here is what God revealed to me about His way: 

"How do you know what your life will be like tomorrow? Your life is like the morning fog—it’s here a little while, then it’s gone. What you ought to say is, “If the Lord wants us to, we will live and do this or that.” Otherwise you are boasting about your own pretentious plans, and all such boasting is evil." James 4:14-16

By spending TIME with Jesus, He can renew my mind. When my mind is renewed, I will no longer stress about all of the planning but rather rejoice in TODAY...after all, that is all we are promised, right? Wow does that change things just a wee-bit, huh?

I am also seeing this concept of time in a different way (living in today) when my daughter started her second year of preschool. Driving her to her first day I realized that one-day, not far off, all three of my children will be in "all-day school"......!!!!! Wait?! WHAT? In just a few years? THE DISHES CAN WAIT! I only have 1,095 more days until my three kids are in school?! Three years. It's not much time, regardless on how big the number looks. My 4-year-old proved that. So, priorities. 

What matters?

RELATIONSHIP.

As my handsome husband says, "The important stuff will get done." I think I have misinterpreted the "important" for the tasks of life. Focus. Focus! FOCUS! My relationship with God is of the utmost importance. My spouse and children are of the utmost importance....

Let's pause. Invite God into our heart and mind. Focus. Intention. Fellowship, Friendship. The important stuff will get done. We just need to re-prioritize what "important" means.

Live in joy today (and always). 
Peace.

Sabbath Summer: OH NO! My phone is full!

"PRAISE THE LORD! My phone's memory is full!"

When I started this Sabbath Summer journey in May, those certainly were not words you would have heard coming out of my mouth but almost three months later I find it to be a joy that my phone's memory is full. And here is why:

Prior to this journey many people would often comment on how much I would post on social media and my craze for always having to capture the moment on camera. It's true. My husband, who is not on social media, would also frequently comment that everyone knows so much about our lives that it left little room for actually "catching up." I mean, why would you need to catch up if your whole life is on display for everyone to witness and in the front row at that! Convicted by this and the growing evil in the world, the momma bear came out in me. First and foremost I want to protect my children. Next, I wanted to cultivate deep, authentic relationships which would happen face-to-face instead of screen-to-screen.

I started by first deleting the offending phone app (I am sure you can all guess what that is). From there, I stopped posting all together for a period of time and made a pact to myself to only log-on when at an actual computer. It worked! Next, I decided to put my phone down. Instead of being known as the one who instantly returns text messages, I found that I would have 7, 8 or even 9 or more unread messages at the nights end. I saw this as a victory.

With my children, I also began to think about them as young grade schoolers. Did they give me permission to post their lives so publicly for the world to see? Is it an invasion of THEIR privacy in which I have spoken for them by making a decision that it was okay to be so open with so many strangers about THEIR lives? With the increase in child-trafficking, I want to leave little room for someone to go after my three precious littles when so much information is already easily available (and some of it from me!!). How scary!

Not to mention the vast amount pictures and videos I have accumulated. I create family "year" books and even at that there are SO many pictures I max out the page numbers AND picture limit every year. I found that I often remember the picture of an event before I remember the actual event. I would like this to change. This has been a hard one for me and a habit/mind-set that I have had for almost two decades. Yet, with a full phone memory, it helps me stay present and embrace the ordinary making is permanent in my mind rather than a picture.

I recently read an article about a teacher who posed the journal prompt, "I don't like cell phones because...." The results were sad, convicting and eye opening. Her grade school students made comments like, "I wish phones were never invented." "My parents care more about their phones than me." "Phones are more important than I will ever be." WOW! Is this the generation that we are creating? Are these the feelings we are making our children have by being a phone-obsessed generation? I want to choose different for my children. Tonight I asked my daughter this, "Does mommy spend too much or not even time on her phone?" In the same feeling as the children above, she said, "too much mommy." Even with a valiant attempt, I am still on or near my phone too much. I am so glad my 4-year, in her honesty, told me how she felt. It is a reminder of the greater thing in life--relationship. One day my daughter (and my sons for that matter!) will be grown, having her own friends, hopefully in college, and  working. She may be married. She might even move out of the state...so WHAT AM I DOING!?! Wasting theses precious moments in time tied to a "meaningless" device that brings great separation between me and those I love the most. Please, do not mishear me. I think phones are fantastic! I love snapping pictures, calling, connecting through messaging/FaceTime and even the ability to do a quick web-search. Brilliant...but when phones take the place of (or overshadow) important relationships and being present then this inanimate object has GOT to take the backseat.

Obviously, I still have a ways to go in this area (as convicting as my daughter's response was!). Yet today, victory! My phone's memory is full. If you asked those you love the same question, what would their response be?

Sabbath Summer: The Duality

In this day of age many sayings/cultural norms grant women the "right" to be who they want. Be independent! "Do anything you want," they say, "Make your path. Follow your heart."

Yet a life as a Christian (and a woman at that) tells a different story.

Here is what God is showing me (then I will tell you what this means to me):

• I must be dependent on God not be independent as the world calls.
• I am made with a purpose, gifted to be used by God. I can do what God has created me to do/become and within that there is great freedom as I press into the gifts and talents HE has given me.
• Jesus said that HE is the way, the truth and the life. He IS the path so what path would I make for myself that would be any better than the one Christ has already made for me, specifically, and for us as collective believers.
• The OT says that the heart is deceitfully wicked above all things (so why would I want to follow my own heart/desires?) Doing so could lead to death of sorts (physical, emotional, relational, financial, etc.).

These things I have been pondering durning the SS blog series. Since I don't teach at the university during the summer my attention has focused on God and supporting my family while healing from all the events of this past year. I have realized, once again, that I have began to lose a little more of who I am as an individual to become what the world wants me to be (what I think I should be...the epitome of fulfilling the stereotypical roles of a woman, wife, mother, working-professional, friend, neighbor...you get the picture). My focus has been on being the best wife I can be to my husband of eight years and the best mother I can be to my three children. In the mix of that, my focus has been on keeping our household afloat: dishes, laundry, grocery shopping, paying bills, planning for my upcoming year of teaching, our upcoming year of ministry and thinking about/preparing for our fall schedule: preschool, ballet, swim and gymnastics lessons. My mind is like an Internet web browser with a million tabs open. Then I realized, in this process I have forgotten to dream a little, to set personal, achievable goals for myself. But, is it really that important?

The bigger question is who is God and what has HE created me to be and do.

I recently started a new bible study questing to deepen my relationship with God. Without this (my focus on Christ) as my foundation, I can do nothing. For in Him, I live and move and have my being (Acts 17:28).

In this moment I am called to support my husband as we make some very big decisions about his work and other future possibilities on the horizon. I am called to submit to his leadership, as Christ describes in Scripture. I am to be supportive, be in prayer, offer my opinions and impressions and then let God do what God does best...direct our future. Of course, we are playing our part, yet ultimately God will prevail.

I put the needs of my children after the needs of my husband. How is their health? Do they have what they need to function in this world? Are their tummies full, minds thinking and bodies active? The needs of a 4-year old, 2 1/2 year old and 15-month old are vast yet each need is important to address. And even more important than all of those items mentioned above, how is their relationship with Christ? In what ways can I better re-present Christ and invite them into the most important friendship and partnership of all--with Christ! This is the second thing to occupy my mind.

The third is our household: what to cook... that is nine times a day (minus snacks) that these three mouths need food in them. NINE! (3 kids, 3 meals a day) The result is a lot of time in the kitchen: planning, prepping, serving, cleaning. In addition to potty-training and a lot of outside play, laundry during the summer seems to be a daily or bi-daily activity. In this, I can refocus on thanksgiving! So much sweetness comes from the kitchen. I am BLESSED to have such a time as this to serve my children and show them the practical love of Jesus.

Then comes service and friendships outside my nuclear family unit. It is in these sweet moments of connection with extended family, friends or another mother (or in meeting a need someone in the Body has), I am recharged, fulfilled and overjoyed to play a small but significant role in the lives of those Christ has called me to be in fellowship with. Putting feet to my faith.

There are other things that float in and out of my day and at the end of the day mostly "not thinking" after 7pm when hopefully all three kids are down for the night and my husband is working late, I reflect. I think of the sweet moments I had with my husband and with each kid. I survey my almost-clean house and smile as I imagine the leaps, giggles and squeals of a days worth of play. I glance to the dining room and thank God for the conversations around the dining table. I breath. I sigh. I rejoice. I am blessed. I usually then start to fold a load of clothes or put dishes away while a Netflix show runs in the background for noise sake. God, thank you for this complex life. This tension of duality: surrender and serve or selfishly pursue my own ambitions.

I pause...

My life is a JOY! God has blessed me with these three little humans, each one having grown so closely inside my womb and now He has grown them into these precious beautiful little people! The husband I serve works diligently at following the Lord, pouring all he can into our family and household while working at a very difficult and sometimes very emotional job. By His grace, we have a beautiful, cozy home that meets all of our needs and more. I love my profession as a university lecturer and find great satisfaction in teaching hundreds of students a year.

I pray all who reads this will reflect on the goodness of LIFE (Zoe) found only in HIM (the Creator). There are many tough days (and tough moments that create those days) but I am learning what matters is my foundation and my focus. "For in HIM, we live and move and have our being." Acts 17:28.

Be blessed as you partake in His goodness for you, trusting that His ways and path are always the best.

Growing a boy: Taking a step

Last week was a very hard week emotionally. Learning our son is "labeled" developmentally delayed. Feeling the rush and pressure to see a bone doctor to get his hips x-rayed. To hear that our son may not walk until 18-months old. To learn we have to go to PT two times a week.

Well, God has a sense of humor.

At the end of the week, as I cleaned up dinner our son "crawl-hopped" into the kitchen. My husband was working late so it was me and the three kiddos. I have been working on leading him as he walks, holding onto both of his hands loosely. I was in the corner of the kitchen picking up the colorful potholder I used to retrieve the fish, dinner, from the oven. I was waving the colorful pot holder in one hand and my son's hand loosely in the other. He pulled his hand away. He stood for a few seconds (his normal) and then.....AND THEN! He took two steps!!

"OH  MY GOSH!!" OH MY GOSH!!" "REALLY?!?!?!" "OH MY GOSH!!" is all I could say.

Of course, no one was there to see the AMAZING event but me. It was a gift. I felt God surrounding me and the angels in heaven cheering. Victory. God knew how much I needed to see this.

He has since, not taken a step on his own (maybe a 1/2 step) but I SAW IT! With my own eyes! My son CAN walk! At 15-months old he took his first. This is bigger than anything I could have asked! Even if he really does not walk until 16, 17 or 18 months, I know that he can! God proved that to me! (And so did Oliver!).

God is SO faithful to us and when we need it the most, He gives us these amazing gifts.

Thank you God for blessing this momma's heart in such an incredible and amazing way. Praise be to God.

Growing a boy: Balancing Needs

Nothing went right this morning. Our voices were aggressive, our minds reeling, our emotions swirling. It started to sprinkle, the coffee shop we went to as a family was closed for renovations and we ended up taking all 5 of us to Oliver's (somewhat unnecessary) appointment...mind you after he did not get a morning nap AND during lunchtime (in which we failed at packing the kids proper food...thankful I grabbed a few carrots, oranges and cheese sticks on the way out the door!).

It is not emergent, not even "super" urgent but certainly necessary to get answers....our son's hip x-ray. Thankfully, even before we stepped into the doctor's office, the x-ray was already ordered (a referral is required from his primary care doctor) and our visit was quick, not even seeing the doctor. We should be receiving a call tomorrow or Monday from the orthopedic doctor to schedule this required x-ray.

In the meantime, we are making room in our schedule for every Saturday pool physical therapy. Yes, pool therapy and clinic therapy...every week.

******
I sit here while all three kids sleep, eating leftover salad from last nights dinner out of the large metal salad bowl (why dirty another dish, right?). Looking outside-in, this really does not seem like that big of a deal..."Really? You just need an x-ray and PT one to two times a week? What is the big deal?" If it was someone else, I might not see or understand the implication of this...the shuffling of schedules, the developmental delays of our son, the emotions/feelings from the 15-month journey to the stress of not knowing when/if our son will be able to walk or how well he might be able to walk. It is scary. It is stressful. There are many unknowns. How do we balance his needs with the needs of our other two? I feel like we either focus completely on him or completely focus on the needs of the "bigs." Where is the balance?

Like a recent Sabbath Summer post, it requires patience and time. I read the first part of Psalm 18 this afternoon. I was reassured that God indeed hears us when we pray AND he will defend us, protect us, led us, give us what we need and show us His faithfulness. So God, please show up, like you have in the past. May our hearts continue to strive towards you. Be in our marriage, in our relationships with all three of our kids, in both of our jobs, in our friendships. God, we need you and can't do this without you. Amen

Growing a boy: Invitation and Response

I received an invitation today. I pondered it swiftly. Reflected on it briefly and then....I responded. I wish I would have taken a moment of prayer, a sigh inviting Jesus to control my emotions. I did not.

In the moment, I allowed the situation to over take me, to alter my otherwise relaxing moment. I was inconvenienced, stressed. I took on the weight of the conversation as if it were life and death. My mind went to the worst case scenarios, my own failures and how, at some level, it was all "my" fault.

Yet the psalmist writes, "So I have looked upon you in the sanctuary, beholding your power and glory." (Psalm 63:2) And in that place, in the inner most sanctuary of the Lord, there is peace, rest, resolve and hope.

The news, the invitation in which I could choose my response: our son is not progressing in physical therapy and now needs a hip x-ray as well as increased PT appointments...JUST when life seems to be under control, manageable and almost fun with three toddlers. BUT--- does this new diagnosis need to change that? No.

My kids are still the same. Nothing really changed from yesterday to today yet my perspective somehow shifted to this place of burden and negativity...thinking, "just one more thing to squeeze into my day."

Of course, I WANT our son to be healthy. I want to give him the best opportunities available. So, I go to the Lord in prayer:

Psalm 62:1 I wait quietly before God, for my victory comes from him.

Change me, Lord. Heal our son. Give me a perspective greater than mine.