Growing a boy: Knowing the difference

Learning new things is good, right. (I say this as I laugh). It has been a long time since I have had to study something and then be "tested" on it. This is how I feel as I learn about parenting Oliver in a new way.

My alarm went off this morning as these thoughts challenged me regarding having a child with sensory sensitivity....

What is the difference between:

• discipline vs. redirection (do you disciple? how...without evoking triggers & without going to the extreme of not disciplining)
• "terrible twos" vs. a child with sensory challenges
• tantrums vs. meltdowns

Other questions:

• How do you parent three young kids (16 and 15 months apart in age) with one of the three requiring "different" parenting. How do you handle the appearance of "special treatment" or special privilege among the three kids? 
• With regard to boundaries and expectations: what is Oliver really capable of? We have a raised bar of exception for our children. Do we need to adjust them without labeling or holding back our son? 
• How do we talk about Oliver's challenges without labeling or restricting what he can do? What words do we use to describe Oliver (or do we need to describe him at all? ..surrendering the need to justify the way God made him).
•  What tools can we use to prevent "craziness" at pick-ups or after church service or while checking out books at the library or buying groceries in the store?
• What tools are there for me to emotionally cope as our son has a tantrum/meltdown and is running away from me screaming and not listening?

These are questions that we are seeking answers for. We know there is no manual or easy answer, but, if this is our new reality, how can we succeed, doing the best for Oliver, for our other two kids, for our marriage, parenting and community? So I end this blog with these questions, desiring to honor God in all we do as we embrace this sweet child that God created and made live.

Growing a boy: Today was an "opportunity"

....yes, an opportunity. I am striving to refrain from calling it a setback or hindrance or a difficulty. I am in the process of re-framing my mind to seek joy and gratitude above all else.

The opportunities today were:

• Trust God
• Be vulnerable (crying in about three or four different conversations...I mean the  not pretty, ugly cry)
• Remind myself of my true identity in Christ
• To believe in my kid(s)...NO MATTER WHAT their actions may display
• PRAY (like crazy)
• Seek support

I am sure there were many more opportunities in my day as I cared for Oliver and the other two. It was an "opportunity" type of day. Not many days lead me to tears but today, I finally broke. At school drop off when a staff member asked how I was....I just started to cry. When I picked up our oldest and Oliver was "being Oliver" I just about lost my mind...no really. I fought back tears the whole way home (about a 25 min drive!). It was a tough day. The emotional build up from Monday and this icky sickness that is clouding my mind, making it foggy, just put me over the edge.  I know there will be hard days. I know there will be huge successes. And above all, I know that God is in them all. He has put me here to bring Him glory. He has made me Oliver's mom to refine me and draw me closer to Him. He has allowed these circumstances so that I can encourage others who share similar stories. This is all good...but today, I faced many opportunities. :)

OSH was so cute today. I gave him a purple rice "heat" pack, thing (weighted). He carried it around all morning calling it his "dinosaur." It was pretty adorable. Someone had sent the rice pack to Oliver's NICU room in Seattle as a gift for me, to help with the healing of my c-section. It is amazing that Oliver is now in possession of this precious and useful gift. A perfect picture of God's foresight. He wore is glasses all morning (with the tape on the inside of each lens) without taking them off! Huge success! He did pretty good at walking up and down the stairs today alternating feet (working in his bilateral coordination and strength). Reflecting on these things, it was a good day.

Why is it that it is so easy to focus so much on the bad or the hard? Dwelling on what could have or should have been? Or on the things that we simply just cannot handle?! But God is so good as He shows us His tender love as we process through these big and small events, reminding us that our identity is not in our circumstances. It is not in what has happened to me (or those around us). We should solely fix our eyes on Jesus, the author and perfector of our faith. In that, our circumstances look different. In light of spending eternity with God, these "opportunity-type days" are just that....an opportunity to put into practice all that God is calling us (me) to be, all He is and has taught us....We are His beloved. Loved by our Creator despite what is/has happened. It is an opportunity to extend to ourselves the Grace the Jesus extends to us....to accept it, believe it.

So yes, today was an "opportunity-type-day," but in today, I saw/felt so much love extended to me as I poured out my heart to others, sought prayer and was reminded of my real idenity in Christ. What a blessing to have a compassionate community who loves Jesus and each other.

Praise be to God!

Growing a boy: Embracing & Processing my "sensory kid"

Oliver had a PT and an eye appointment today. He walked around most of the day with his ear muffs on and the eye doctor put tape on the lens of his glasses to help his eyes from turning in (a vision therapy tactic). I have not even asked Tyler how the PT appointment went this morning (maybe out of fear or simply being more overwhelmed than I already am).

I take pause. Sit with my Bible and allow God to wash over me. He reminded me of all the precious words He spoke to me on Oliver's birthday and within the first month of Oliver's life.

• "I giveth and I taketh away. You have to be okay with that."
• Only I (God) am control of life or death.
• Why not you? Why should you be exempt from suffering in this world?

These phrases sit close to my heart today. They take me back to the minutes, hours and days after Oliver's birth. They remind me of God's faithfulness, His peace, during those times. He KNOWS Oliver! He was good enough to show us, just a mere two days ago, another aspect of this amazing human HE has made...He made Oliver JUST for OUR family. This means that God also made me to be Oliver's mom. What an honor and privilege.

My mind wants to take over and dive deep into learning about sensory processing, sensory toys and other tools/techniques. (Not bad things). But today I am reminded that God....GOD....God is enough. Nothing more or nothing less. It is an example (I think) of what is recorded in the book of Matthew, "blessed are those who mourn, for they shall be comforted." (5:4). I need the Lord's comfort today as I process this news of Oliver being a "sensory kid" or "on the scale". (why are these labels so icky to me? What do/can I say instead?!). The "new and shiny" excitement of learning this news has quickly worn off. In some ways I feel devastated yet in others I still hold onto hope (JESUS) for this sweet miracle toddler who was given less than 1% chance of survival at birth. You can't see it, but tears well my eyes as I type. I need the Lord's comfort.

I am forever grateful for April 2, April 5, April 13, April 30. These dates are HUGE milestones in OSH's life (birth, surgery, breathing tube removal and his first homecoming). In May, I wrote a blog "Growing a boy: I'm not celebrating" which ended the first chapter of my processing of Oliver's birth and the first two years of his life. We are now moving into Chapter 2 (or maybe it should be section two). Anyhow, I am SO thankful to have processed much of the first two years of Oliver's life, then had a moment's pause-- a wonderful and pleasurable summer of very few therapy appointments and savoring our new backyard. Now, it seems, we are jumping back into another season of challenge that pushes me/us to rest and trust in the Lord. I pray I can keep this in perspective, process quickly (yet appropriately) and not hinder our other two, older children. I pray I will not become obsessed with this discovery of Oliver's sensory challenges or talk about it/focus on it too much. I pray that I can give GLORY where GLORY is due--that I can share God's faithfulness in the midst of this struggle. I pray that God will remain the forefront of my mind and heart---with every up and coming decision we have to make. I am thankful once again for an incredible medical team who listens to us, takes our obervations seriously and does not judge. I continue to thank the Lord above for each of you who join us in the journey as you pray for us and reach out to us. (With tears **again** in my eyes, I type--- GOD IS SO GOOD! Despite anything and everything my salvation and hope rest in Him! I pray the same for you in your life's struggle. Trust that God is FOR you and if God is for you....who can be against you (Romans 8:31).

Maranath.

Growing a boy: Exploring Sensory

Hello All- As you can imagine, my mind is flooded since yesterday's discovery as I slowly put pieces together regarding Oliver's (possible) sensory stuff.

I have a MILLION questions: "are sensory bins really needed? Why do they help? How do they help? Should OSH wear his ear muffs all of the time? Am I enabling him or creating a dependency for them instead of allowing him to learn how to "cope" with the world around him? (And the list goes on!) I am learning that there is no "user manual" or step-by-step instructions but rather 1) seeking the Lord 2) trusting His wisdom 3) studying/observing Oliver in a new way and finally, 4) trial and error. Even though I am overwhelmed today at what all of this could (and DOES) mean, God provides...and here is how:

My beloved dropped the two older kids off at school so it was just Oliver and I, palling around before my Bible study started. I had to make a quick stop at the grocery store before the meeting. Since the store just opened, and only one other car was in the parking lot, I decided not to give Oliver his ear muffs. In the store, our normal discourse occurred (on repeat, I might add), "where are we going? What's that sound? Did you see it?" (Three common questions OSH asks at least 85-hundred-million times a day (in the words of our second child). I rambled off what I saw and heard and then directed his questions back to him like I normally do. It was a fairly uneventful trip. However, at the check-out line, the woman ahead of me, who also had a young child, started to engage with Oliver. She asked him his name and how old he was. Through the conversation, it came out that she was a special education teacher who teaches "sensory kids." WHAT!?! What providence it that!?! I reached out for her and told her that I needed her input on this recent discovery. We then chatted in the parking lot (while Oliver wiggled and squirmed in my arms). She "KNEW" my son! This (sensory whatever-he-has-thing) is REAL! She said, I bet he loved being outside more than inside. YES! She gave some examples of tools she has used with kids. She affirmed the use of ear muffs whenever he might be in a situation that is loud, busy or chaotic. It was like she gave me permission to not justify Oliver or why he is wearing ear muffs or why he doesn't act like a "normal" 2.5 year old. I felt excited. This is a real life thing. In addition, we have a PT appointment scheduled for tomorrow! I am hoping we can continue to learn more about Oliver.

I still have NO clue on what all of "this" means or how to help Oliver, but it feels so great knowing that I AM a good parent! That Oliver is just not "acting out." He has a real problem and now I can help him navigate towards a solution (or solutions). For me, really, this is life changing! I no longer have to feel embarrassed about his outbursts or his intense personality. I don't have to make excuses for him or explain his whole birth story to prove the point that "he has just gone through a lot." Yes, Oliver HAS gone through a lot but I am so thankful that he is alive. He displays God's character is so many ways. It is my privilege to teach him how to emphasize those amazing attributes. I am blessed ... SO BLESSED... by all of your loving feedback, prayers, ideas, podcasts, and acknowledgement. This new discovery has taken a huge mental toll but I know that we are not alone in this! Keep your advice and resources coming! And please pray for us! I fight the thoughts that I am just "making this up" or "making a bigger deal out of this then I need to." 

I am so, so grateful for every one!

Growing a boy: sensory disorder?

 Oliver has never done anything without grand expression...his gestation, birth and following have proved that. Recently, our nearly two and a half year old has been leading us to question ourselves as parents as we pull every tool we used on the other two kids (and then some) out of our parenting toolbox. Daily I feel like a failure because I cannot redirect or calm our very vocal and "wild" child. And trust me, it is not for a lack of trying!

The beginning of the summer our family focused on learning the Fruit of the Spirit (Gal 5). The Lord must have led me to this because in this trying season I frequently play the fruit of the spirit song in my head, begging God to refine me with patience and kindness towards Oliver.

Recently, I have been so embarrassed by his random tantrums, outbursts and mood swings. They occur out of nowhere....at his big sister's kindergarten pick-up line or the grocery store or even just loading up in the car to go somewhere. Everything seems to be a "big deal" and most of the time it feels like a battle. I weigh my options..."is it really 'worth' it to take him out in public to pick up the milk or can we until daddy comes home so I can run out quickly." I hate to say it (but in all honesty) I need LOTS of breaks from Oliver. I use nearly all my patience and emotional reserves on parenting him (and since dealing with my extremely low iron and IV iron infusions in August, this has become even less in my reserve tank!). Upon going out, I have to prepare myself for the possible glares and stares (and even "helpful" parenting advice) that I know will occur WHEN Oliver has such a fit.

Well, today I **THINK** I learned something new about Oliver which may lead us down a different parenting track (and possibility even more PT/OT appointments we already have....ugh!). But I am excited! Read on...

A year ago November, we moved into our home. We finally made time to tackle unpacking, organizing and cleaning the garage. In doing so, my handsome groom found the child-sized noise canceling ear muffs. The three kids clamored at the new "toy" and took turns using them as they played in the driveway. As I looked up from the stove out into the driveway (Tyler was out there with the kids), Oliver was so happy wearing those ear muffs. Not once did I see him throw a big tantrum (well, until we tried to put them away for dinner). For the last few weeks, at random, my groom would allow Oliver to wear these treasured ear muffs as they "worked" side-by-side.

Today, I had an idea. I wanted to experiment. The library was on the agenda today so I decided to allow Oliver to wear them....in the car, in the library, to the bike shop and into the grocery store. WOW! What a HUGE difference!

Upon entering the library, the librarian noticed his ear muffs (and a BIG muss about the happen) and immediately handed me a sensory box full of sensory toys (something I am vaguely familiar with). A weighted snake, textured balls, and a calming water-oil-upside-down-turny-thing captured his attention at once and he calmed down. I was amazed. Literally in an instant of placing the weighted snake on his chest/tummy, he calmed down. A part of me was a little sad at another looming label...."I have a sensory kid" but the greater part of me was overjoyed to see him relax and settle back into the stroller, looking so at ease and comfortable. He visited the bike shop and grocery store with little incidence and we even had a quick visit with a local police officer. I feel like he "lasted" a lot longer on this trip than previous trips we have taken. In all honestly, I was not expected as good of a day as we had (shame on me!).

So, I would say that today was a huge success. I had to work through the awkward stares that I received when others noticed Oliver wearing ear muffs (and all of the labels that go with that) but I felt like a proud mom today...loving my kid, putting his needs first above others' opinions, taking care of him, listening to my instincts and discovering something new about him. I am now reading up on sensory processing disorder and the possible link to his premature birth. In doing so, I also remembered the weighted bean-bag they placed on his legs while in the NICU and how, at two weeks old, that calmed him down. A whole new world has opened up for me today. If any of you have helpful resources or ideas or tricks we can try please pass them along! I want to feel confident in my parenting approach. My desire is to not need breaks from him but to better understand who God has created him to be and to play into that!

Thanks all for reading and joining us in this journey of raising our sweet, precious Ollie.

A letter to my daughter....

Her clothes are picked out and hanging in her closet. Her brand new shiny black shoes are ready to be worn for the very first time. Her fuzzy unicorn backpack is all packed and ready to go. Her snack is made and her water bottle is labeled. She will rest her head tonight on the same pillow that she has slept on since birth only to wake up to an ever-changing and brand new season of life… Kindergarten.

I never thought that I would be the mom who would cry or get emotional but it’s happening. The last five years I have treasured my sweet daughter & now...now I am entrusting my treasured first born to the world of academia. Her world will open up in new ways and she will learn to explore the world through a new perspective. Her generosity and kindness will now be shared with more than just her family and neighbors. There will be a large part of her life that I will no longer be directly orchestrating. Just one more heartstring is being cut tomorrow. As she grows older, she is starting to be more independent. Making her bed, picking out her clothes, preparing simple meals and helping with household chores. Of course these things are expected but I don’t know if a mama‘s heart is ever truly ready to see her beautiful baby grow up to a little girl soon to be an adolescent and then an adult. 

I am fully confident that she is ready to start this journey…even as a “fresh 5” (year old). I am excited to see what she will do, how she will change and through this education, love God more. It is a thrilling start to a long journey. I pray for her and us as we learn this together. I am thankful every day for this precious soul. I look forward to that first hug and cuddle once the first day is done…holding her so tight (yet knowing that I will always have to let her go). This is a first for us both baby girl! Lets do it together. I love you so deeply daughter! I hope you will ALWAYS KNOW just “how big I love you!” Have a great first day tomorrow!