Growing a Boy: Help Me Sail

I knew it would be hard. Yet the hard has not been at all what I expected. Days crying, researching, withdrawing from the world, not knowing what to do. Most days my head feels like it is barely bobbing above the water. I gasp for air. One more wave will surely pull me under. This is not the life I imagined having yet here I am. I seek to have a heart of gratitude, to see the good in all that is around me. I also recognize in the blip of life, these moments are small but the decisions I make in these moments will leave lasting evidence and imprints on my child.

I have a disabled son.

He may not seem it to the looking world. I think that is some of the challenge. The somewhat invisible challenges are often harder for onlookers to embrace because they are not seen--they are not tangible. To be honest, it is hard for me sometimes to embrace them too (and I am his mom). 

Entering first grade, I had such hopes that our boy would thrive. He overcame so much in kindergarten that I thought without doubt he would keep propelling forward in the world of academia. A month into first grade--- road block after road block we have hit. I am left with the desperately difficult decisions-- do we keep going? Do we repeat 1st grade? Do we just "get through" this year and then move to a new school next year? On the surface (or even typing them), the decision does not seem that big. Am I overreacting? Am I hype focused on something that doesn't really matter?

But it does matter. I am his mom. I am his first advocate (along with my husband). We lean into our faith...no matter how little our faith might feel in the face of these mountains. In a moment of desperation, I purchased a necklace on Amazon. A necklace, you may be asking, what does that have to do with your struggle? The gold chain, with a circle pendant, holds a mustard seed. A small, almost unnoticeable mustard seed. If you are the believing type, you may recall the parable. A faith of a mustard seed can move mountains. That is the hope I am clinging to. If I can just hold it together, "muster up" a bit of faith, I can sail through the storm--not drown. The Hope that rests in Jesus alone is enough. He is good. In His love, He gave me my medically complex son. Truly a gift. Through my son (and many tears and toil), my faith deepens. I see God answer prayers in subtle ways. I find ways to uphold others in my community who are also struggling. In my suffering, I strive to serve. To remove my eyes from the pit in front of me and look up and look around. What beauty to behold. Just in this past week, I have seen not one but TWO double rainbows--at just the right time. A visible reminder of God's love and promises to me. What joy and hope. In this past week, a dear friends sent me and unexpected "just because" "I'm thinking of you" gift. Wow! God does see and hear the deep longings of my heart. 

I recognize we are all suffering in some way. We are all facing hardships of varying kinds. I am not alone. I try to fix my eyes on the author of my faith, share my struggles with others, see the struggles of others and cling to my mustard seed of faith. God will work out the details. I simply hold my hands open and up. I surrender, Lord. I give you my little faith, my tears, my toil, my deep pain. Prevent me from drowning. Instead help me sail.

Growing a family: Defeated in the Victory

 Have you ever felt defeated even in your victory? Today feels like that kinda day.

1. A decision was made.
   
2. I am on my way in a few short minutes for one of two medical appointments this week.
3. My son has an even bigger appointment in just a few days.
4. We are celebrating a birthday and a half-birthday.

 

So much to celebrate. So much to mourn. So much to process. So much to just trust it ALL with the Lord.

The Lord is faithful, even in our failings. The Lord is faithful, even when we make a decision (not knowing what is better or best). The Lord is faithful as we wait for diagnosis. The Lord is always faithful. 

We must remember this when we feel defeated on our victory. Why? BECAUSE WE ARE VICTORIOUS! We stand in a position with the Most High. Because HE fights for us. As our pastor said on Sunday--we know the end of the Book. We win. 

Let us hold that posture today. We might **FEEL** defeated but we are not. We are victorious IN HIM and in Him, He works all things together for good.

I will try to rest in this today. Will you?

Growing a boy: Ugh! The Turning Point

Nothing about our youngest is "normal." Yet I think about myself, my husband, our other two kids, my friends etc. And then I ask myself, "What really is normal?" because God has made us each so perfectly unique.

Over two months ago, I took OSH to a neurologist, per the recommendation of his Seattle doctors. In that neurological appointment, it was revealed that OSH does have neurological deficits...we just don't know what exactly they are or how extensive they are. The doctor placed OSH in a category, giving him a mild diagnosis (that I do not wish to share out of fear of labels and partially out of an unwillingness to accept such label). It was recommended that OSH receive a head MRI to further explore his deficits as well as a means to better facilitate his growth and learning. However, to get this MRI, OSH would need a COVID test and sedation. 

My initial thoughts, "NO! I WILL NOT PUT MY SON THROUGH THAT TO SIMPLY "KNOW" WHY HE ACTS THE WAY HE DOES...IT DOES NOT CHANGE WHO HE IS!" (as I type, I can feel my blood pressure rise)

My husband agreed that it was not a necessary procedure, especially given the raising cases of COVID in our city. SETTLED! DONE! I had my "normal" boy "back." (I could put his medical difference behind me and continue on as though he was and is in fact, normal.)

As the weeks have gone by since this appointment, my mind and head fluctuated in waves. "Ignorance is bliss, right?" I would say to myself. Or, "does it really matter if we know WHY or HOW these neurological deficits occurred?"  The doctor had three possible reasons for OSH's neurological hyper-responses. But did we need to know?

 

Then...the turning point 

This past week we have seen OSH have a difficult time opening a doorknob or holding his Legos in his right hand. He began to say things like, "Mom, this is not my power hand because it doesn't work as well, it is not stronger." 

Queue the heartbreak, heartbroken, heart shattering song.

My son is different. Now, I need to know why.

So in the coming weeks, on a scheduled Friday, our sweet youngest will stop eating by 2am. He will stop drinking by 8am, he will get sedated and then, in the early morning, have his head scanned. To say that I am terrified is an understatement. Will there be complications with his sedation? How will his lungs do as he is "under?" How will he manage not being able to eat? Will he be able to handle the noises of the hospital? And on and on it goes...

And...only one parent can go. I so badly want to be there with him; however, Daddy stepped up to fill a spot that I think I would otherwise be too emotional to fill. So what then should be my response? 

PRAISE, TRUST, FAITH and HOPE that our little boy was created FOR and BY God. In his life, God will work all things out. So, I *try* to put my fear aside and embrace this opportunity to display God's unrelenting love to our son and to the watching world. Because God has made us all unique, our own kind of normal to show the world just how GOOD God really is.

Please join us in prayer.

Growing in Faith: Overwhelmed; Let us pray

I have much to say about the scriptures I read today-- yet my heart is overwhelmed. So here are the general impressions. I pray they speak to you.

• For our nation, especially this week (inauguration), let us pray for unity. Lest we see what Jesus describes in Matthew 12:25 

  “Every kingdom divided against itself will be ruined, and every city or household divided against itself will not stand."

 

• Let us be FOR God: "Whoever is not with me is against me, and whoever does not gather with me scatters." Matthew 12:30

 

•  What are we thinking---speaking to our generations (family, children, community, co-workers)? "For the mouth speaks from the overflow of the heart." Matthew 12:34
  

 

• Matthew 13:1-9-- discusses the parable of the sower and the reproduction of the planted seed. Many of the seeds do not grow and instead they wither. Only a few produce good fruit.  My remaining questions: Am I producing? Are you producing? What I am producing? What are you producing? Are you hearing what God is speaking to you? 

Matthew 13:13-15

¹³ This is why I speak to them in parables:

“Though seeing, they do not see;
    though hearing, they do not hear or understand.

¹⁴ In them is fulfilled the prophecy of Isaiah:

“‘You will be ever hearing but never understanding;
    you will be ever seeing but never perceiving.
¹⁵ For this people’s heart has become calloused;
    they hardly hear with their ears,
    and they have closed their eyes.
Otherwise they might see with their eyes,
    hear with their ears,
    understand with their hearts
and turn, and I would heal them.’

Growing in Faith: When I worry

I had to confess last night to my husband. I had to put into words what my heart and mind were struggling with. After pondering, I knew I had to vocalize my....worry.

Yesterday was a hard, HARD day for our nation. The act of domestic terrorism is appalling. I am not writing this to start a debate, but rather, as an exercise in looking at humanity. No matter what side you stand on, where is the moral ground?

I worry. And at times, I am afraid. 

COVID, my husband, children, our nation, my home, finances, war, death. 

These are just a *few* worries and anxieties I have...there are others like schooling for my children next year, protecting our new flock of chickens (two of which have already died) all while trying to "hold it together."

In Scripture, I am reminded, "don't worry about tomorrow because tomorrow will worry about itself. Each day has enough trouble of its own." (Matthew 6:34)

I sighed a cleansing sigh. I breathe a refreshing breath. 

My Heavenly Father knows what I need. He will sustain me, take care of the details and heal my heartaches. Even when I am tempted to sit in my worry, He pulls me away. He has better for me.

As a result, I need to change my focus...not on all of the areas of my life that are hard or frightening but rather on His kingdom. For it says, "But seek first the kingdom of God." (Matthew 6:33). When I do this, I have confidence, from Scripture, that He will provide for my every need.

Cast your worries upon Him. Confess your worries and anxieties. He will do more than comfort you, He will make a way for you in the wilderness of this life and provide far greater things than you could ever imagine. Rest in Him today, and the next day, and the next day after that. 

YOU. ARE. NOT. ALONE.

Growing in Faith: FIGHT

Sunday: Not what I was expecting. A leaky roof and a husband who took a COVID test due to "unexplained symptoms." I would have never predicted these events yesterday when I laid my head on my pillow for the night. Yesterday, life seemed a little less stressed and (dare I say) "normal." Yet today, God had other plans for our family. Plans to rest more deeply in Him and cozy up for a ride that would allow our faith to be put into practice.

In the passage I read yesterday (Matthew 4), after Jesus had been baptized, He was lead to the desert where He was tempted. In His flesh, did He know that after His baptism His faith would be tested?   Despite knowing or not knowing, Jesus relied on His knowledge of Scripture and His relationship with God the Father to sustain Him during these tempting trials. He could have thrown up His arms in surrender (to the wrong thing!!) and acted in His flesh. Yet even when encountered with the "hard things" (temptations from the devil), He leaned in -- fighting them rather than embracing them. 

What things are you facing in your life today that you need to lean in and FIGHT rather than embrace? Maybe it is apathy? Fear? Anxiety? Have you knowingly or unknowingly surrendered to the "wrong thing... the temptations that are starring you in the face?  

Whatever it is, F-I-G-H-T!  

Use the Words of Scripture as your sword and your relationship with Him as your army. You can and will conquer. I am reminded of this verse: 1 Corinthians 10:13

¹³ No temptation has overtaken you except what is common to mankind. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can endure it.

 

So... as I press into my day (leaky roof and the fear of a positive COVID test), I lean in and FIGHT with the power of God encompassing me and the Truth His Word brings. It is WORTH it.  

 

Today, what are you fighting? What will your weapons be? Lean in, dear friends, and FIGHT! He is with you.

Growing a boy: Today was an "opportunity"

....yes, an opportunity. I am striving to refrain from calling it a setback or hindrance or a difficulty. I am in the process of re-framing my mind to seek joy and gratitude above all else.

The opportunities today were:

• Trust God
• Be vulnerable (crying in about three or four different conversations...I mean the  not pretty, ugly cry)
• Remind myself of my true identity in Christ
• To believe in my kid(s)...NO MATTER WHAT their actions may display
• PRAY (like crazy)
• Seek support

I am sure there were many more opportunities in my day as I cared for Oliver and the other two. It was an "opportunity" type of day. Not many days lead me to tears but today, I finally broke. At school drop off when a staff member asked how I was....I just started to cry. When I picked up our oldest and Oliver was "being Oliver" I just about lost my mind...no really. I fought back tears the whole way home (about a 25 min drive!). It was a tough day. The emotional build up from Monday and this icky sickness that is clouding my mind, making it foggy, just put me over the edge.  I know there will be hard days. I know there will be huge successes. And above all, I know that God is in them all. He has put me here to bring Him glory. He has made me Oliver's mom to refine me and draw me closer to Him. He has allowed these circumstances so that I can encourage others who share similar stories. This is all good...but today, I faced many opportunities. :)

OSH was so cute today. I gave him a purple rice "heat" pack, thing (weighted). He carried it around all morning calling it his "dinosaur." It was pretty adorable. Someone had sent the rice pack to Oliver's NICU room in Seattle as a gift for me, to help with the healing of my c-section. It is amazing that Oliver is now in possession of this precious and useful gift. A perfect picture of God's foresight. He wore is glasses all morning (with the tape on the inside of each lens) without taking them off! Huge success! He did pretty good at walking up and down the stairs today alternating feet (working in his bilateral coordination and strength). Reflecting on these things, it was a good day.

Why is it that it is so easy to focus so much on the bad or the hard? Dwelling on what could have or should have been? Or on the things that we simply just cannot handle?! But God is so good as He shows us His tender love as we process through these big and small events, reminding us that our identity is not in our circumstances. It is not in what has happened to me (or those around us). We should solely fix our eyes on Jesus, the author and perfector of our faith. In that, our circumstances look different. In light of spending eternity with God, these "opportunity-type days" are just that....an opportunity to put into practice all that God is calling us (me) to be, all He is and has taught us....We are His beloved. Loved by our Creator despite what is/has happened. It is an opportunity to extend to ourselves the Grace the Jesus extends to us....to accept it, believe it.

So yes, today was an "opportunity-type-day," but in today, I saw/felt so much love extended to me as I poured out my heart to others, sought prayer and was reminded of my real idenity in Christ. What a blessing to have a compassionate community who loves Jesus and each other.

Praise be to God!

Getting Healthy: Just getting started

I just closed a two-year chapter/blog series titled "Growing a boy" on the challenges of dealing with a son born prematurely who was close to dead at birth. As I have finally closed that emotional chapter, finding healing in more ways than one. Now, I am ready to move on. I am starting a new chapter...a new chapter with passion, a little motivation and just a little more determination to come against my excuses. I want to be physically healthy again.

Here are the challenges:

• A husband with an irregular work schedule making it difficult to find time away from the kids to exercise. 
• I work full-time (yes it is online but it still requires a lot of my time/attention amidst kids activities and husbands schedule). Like working out, I feel like I have to squeeze my job into our already crazy/tight schedule. 
• Three children ages 4, 3, 2 who are relentless and need constant supervision. Working out with them is next to impossible without tripping over them and hurting myself (or them).
• Sleep deprivation: Even though my kids are a little "older" I am exhausted at the end of the day (to the point of being an almost angry mother at bedtime --Dear Lord, PLEASE HELP ME!). At least one of the three kids awakes during the night; the husband comes home between 1-3a (usually waking me up) and then our brood is up at 6am. I have been trying to get to bed by 9:30pm on most nights...it seems to be helping. Naps were an option but now 2 out of the three are on a nap protest (& quiet time turns into a fight...why do I EVEN TRY to have some alone time in the afternoon...okay, sometimes I just let them fuss in their room & tell them that momma needs a time out).
• Food: Let's be honest, I eat what my kids eat and snack on what they snack on. Husband is not home most nights so I end up snacking for dinner after the kids are asleep. True confession: the other night I have popcorn and ice cream for dinner. Winner winner! ;)
• Another food challenge: I don't like to cook (& don't really know how to get out of my norm and/or make food everyone in my family will eat or enjoy. I really don't want to waste my efforts...but maybe I should?).

Excuses (see above and below!):

• For the first year of our youngest son's life, I was overwhelmed, burdened and stressed (to say the least) due to his eventful (for the lack of a better word) entrance into this world. Two years ago April, I was in survival mode.
• After this first year, I told myself it was time to reclaim my health...in August 2018 actually. In doing so, I took a smoke-stack tower fall, straight over onto my left hip on our tiled kitchen floor while "trying to fit" exercise in while my youngest was contained in the highchair. After a round of physical therapy in December-February, I finally felt relief in my lower back. 
• But then, the excuse of "we just moved" crept in in November and I have stayed there until recent.

Motivations:

• I want to get healthy so that I can hike with my husband, run & play sports with my kids and enjoy the calm kayaking waters without pulling a muscle.
• I am TIRED of carrying this two-year postpartum baby weight (and wearing maternity shorts, baggy shirts and stretch pants because 1) I have them and 2) because nothing else really fits well (or comfortably).
• Exercise and wellness are legacies I want to leave for my children. I want them to see their mother working out and eating well...not for the sake of appearance but for the sake of taking care of the temple (my body) given to me by the Lord. It is my responsibility to take care of my body.
• AND....My doctor said so. Okay...I may have probed her just a little at my recent annual check-up (which has actually been TWO years) to hear her say that I need to lose weight but I guess it helped since I am writing this new blog series. Very kindly my doctor say that I am overweight....but closer to normal-overweight than obese-overweight (phew!). But the real kicker---she told me is is much harder to lose weight the older you get. Wow! I just turned 37 (seems old to me!) so I may as well shed some weight and enter into the "normal-normal" range. 

What's going for me:

• YOU! My reading audience in whom I'm hoping will encourage me in this process with easy favorite, healthy family recipes, encouragement to workout, etc.
•  Spring/Summer: In the recent sunny days, I have enjoyed pushing our youngest in the stroller while the "big kids" rode their bikes. Bonus: everyone enjoyed it especially with a destination like a play park at the end.
• My husband works night. (Yes, this is both a challenge and a "what's going for me"). I have the time after the kids go to bed to workout...now...I just need to get over my almost-anger-super-exhausted-mom persona and (as Nike says) JUST DO IT!
• I have Amazon and the internet.  I lost my 21-Day-Fix Workout videos in the move (anyone have them I could borrow?!?!) but I did find a pretty good workout program on Amazon. With the help of the internet, I have access to PLENTY of healthy food programs. I am thinking about trying the 21-Day-Fix eating plan again. I did this after my first child and lost a decent amount of weight and felt great. It was very adaptable to my food allergies too.

Plan of attack:

• I don't have one...okay, I have one kinda in my head and here it is:
• Blogging my journey for accountability (wanna join me?).
• Food prep...should I start tonight (but it is the season finale of Grey's Anatomy!).
• Exercise: Make it a goal to be active every day with two or three intention workouts per week. This I can do...I can push my kids to be a little more active: kicking a ball with them, running around the "track" in our house and going on walks.
• Simple, right? Well let's see where this one goes..... to be continued.